Wednesday, August 11, 2010
Chiari Vlog on Youtube!
So i started a "Chiari" V-log on my Youtube Channel, I am kicking myself now, i really wish i would have thought of this when Bryce was having each of his surgeries Through the last few years. I would have loved to Documented all of what was going on, right at that time. But as you can imagine I was more then busy, and stressed so of course I never thought of it. = /
We have been searching the internet non stop for answers with this happening to us. And We can find answers to a few things, but with Bryce's condition being so much worse then a lot of doctors have ever seen it became very hard to find the resources that we needed. And one of the places we found to use as a outlet was youtube! I looked and not many people talk about this subject, and i am guessing that is because of lack of knowledge, and also "Chiari" is becoming less rare now. ( Ugh i hate to even say that)
So I decided that this could be a good thing. I am aware i am just starting out, and this first video was just icky, ha. I know the lighting and even the sound was horrible. This video was honestly Just a test video so i could look it over and see what i needed to change, but then after trying to
figure out how to upload and all of that i became fustrated, so i decided to just upload my test video.
Also this video is nothing special yet, It is just me telling everyone what i would like to see my self doing with this project. Just kinda stating the facts real fast, and getting it up and going.
The next video Bryce will be telling everyone his story. And that im sure will answer more questions that anyone might have. Anyway, if anyone has any questions for us just let us know and we will get back to you! He knows a lot about the Chiari, and the medications, and stuff you would never think of, because with everything that is going on this has been a learning process for us as well. So anyway here is the link to the video, and make sure to check back at least once a month to the youtube, i will be adding more! = )
We have been searching the internet non stop for answers with this happening to us. And We can find answers to a few things, but with Bryce's condition being so much worse then a lot of doctors have ever seen it became very hard to find the resources that we needed. And one of the places we found to use as a outlet was youtube! I looked and not many people talk about this subject, and i am guessing that is because of lack of knowledge, and also "Chiari" is becoming less rare now. ( Ugh i hate to even say that)
So I decided that this could be a good thing. I am aware i am just starting out, and this first video was just icky, ha. I know the lighting and even the sound was horrible. This video was honestly Just a test video so i could look it over and see what i needed to change, but then after trying to
figure out how to upload and all of that i became fustrated, so i decided to just upload my test video.
Also this video is nothing special yet, It is just me telling everyone what i would like to see my self doing with this project. Just kinda stating the facts real fast, and getting it up and going.
The next video Bryce will be telling everyone his story. And that im sure will answer more questions that anyone might have. Anyway, if anyone has any questions for us just let us know and we will get back to you! He knows a lot about the Chiari, and the medications, and stuff you would never think of, because with everything that is going on this has been a learning process for us as well. So anyway here is the link to the video, and make sure to check back at least once a month to the youtube, i will be adding more! = )
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